Christine Honeycutt

My daughter Christine was diagnosed with Parry Romberg Syndrome (PRS) and it’s variant Linear Scleroderma (en coupe de sarbe) in March of 2008 when she was 8 years old, now 12 her life and ours have changed greatly. Her father and I were not given much hope for her treatment. After hundreds of hours researching we decided to contact Dr. Siebert to discuss the possibility of Christine having the micro vascular tissue transfer in hopes to stop the progression of PRS.

After Christine’s three surgeries, I can honestly say that Dr. Siebert was an answer to our prayers. I trust him with my child’s life. He and his staff are the best! They have become just like family to us and we look forward to seeing them and visiting with them every time we make the trip to Wisconsin. Dr. Siebert has set the bar so high for other doctors, especially in Christine’s eyes. I can’t see any other doctor reaching his level of excellence, he’s got the whole package…his knowledge, dedication, confidence, skills, experience, follow up care, since of humor, easy mannered personality, oh and his bed side manner is incredible. All this is why we think he is the greatest! The Dr. Welby of our times.

His follow up care is unbelievable; he is always available to us via phone or e-mail. After Christine’s second surgery she had a complication almost three weeks after the surgery (no fault to the procedure,…just a freak incident) The doctor never left our side so to speak…he was on the phone with the ER doctors as soon as we arrived in the emergency room here in NC, he was completely in charge of the 8 hour ordeal. He was on the phone from 7pm to 3am with a team of doctors in two different hospitals. Christine’s dad and I were especially thankful for him during this event because it was so comforting just knowing that Dr. Siebert was making Christine’s medical decisions.

It’s very hard to articulate the feelings of gratitude we have for Dr. Siebert, he has given our family hope, and he saved our little girls face from further destruction, pain and all that comes with that. Now our daughter has a chance to have a normal pain free life with a future of endless possibilities.

I am forever grateful to Dr. Siebert and his family for the dedication and sacrifices they all had to make in order for their husband and father to be the great surgeon he is.

Christine’s Mom Vicki



Surgery #1
Christine with her buddy LuAnn

Surgery # 2
Christine with Dr. DaBombdiggety

Hank

Getting the diagnosis of Parry Romberg Syndrome was devastating to us. The doctors didn't know much about it and the only treatment option we were given for our then seven year old son was a form of chemotherapy and intravenous steroids. We weren't comfortable with this and started to research other options. Everywhere I looked, I seemed to hit a brick wall...After 2 1/2 months of constant searching, I was directed towards Dr. John Siebert, a doctor who performs an "intervention surgery" on PRS patients. I sent the doctor an email and was so shocked when he called me on my cell phone, just a couple of days later! It's rare to have a doctor actually call you!

The minute I heard his reassuring voice, I knew things would be different. We flew across the country to see him for a consultation. He took one look at our son, Hank, and said, "I can help you." My husband and I let out a huge exhale of air...I think we had been holding a breath since Hank's diagnosis! Hank had a "micro-vascular free flap tissue transfer" right after his 8th birthday, just four months after meeting Dr. Siebert.

The care Dr. Siebert gave our young son was amazing! From pre-op, to surgery to the after-care, Dr. Siebert was there. He even followed up with us after we got home. At one point we thought Hank had an infection and sent a panicked message to Dr. Siebert. He called right away...it was late...at least midnight where he was. He had just finished with a surgery and was still at the hospital. He waited there while I took photos of Hank and then emailed them to him. He then called a prescription in to the 24 hour pharmacy that we use. Who does that? Dr. Siebert goes above and beyond. (as it turns out, Hank did not have an infection and was just fine)

We can't say enough good things about Dr. Siebert. We admire him so much and love him for what he has done for so many people! Thanks to Dr. Siebert, Hank is enjoying a "normal" life...getting straight A's, playing in the school band, playing baseball...doing all the things a healthy 11 year-old should be doing. A few years ago, we didn't know if this would be possible! Hank has had 2 revision surgeries and each time the outcome is amazing. It's been two years since Hank's last surgery and as we get ready to head to Madison to see Dr. Siebert, we are so excited! Surgery is no fun...but seeing Dr. Siebert makes it all OK.

Dr. Siebert is our hero...he's one of the good guys...we consider him family!

God Bless,
Terri
Hank's Mom